Dyskeratosis congenita is a severe bone marrow failure syndrome which is a genetic condition, affecting children and adults. Our aims are to promote awareness, support and education for the general public and healthcare.
This charity was formed in 2004 in memory of Gary who suffered from Dyskeratosis Congenita. We welcome any support and would be pleased to hear from anyone interested in this condition who would like to help or be involved in any way - we look forward to hearing from you!
What's New
Family Support Day open to Families, Carers and Health Care Professionals
Saturday 28 April 2012
Please register your interest for this Family Support Day
We hope to have talks by Health Care Professionals and interactive sessions for families
Please register your interest for this event
Saturday 28 April 2012 - Venue details to follow
Please email info@dyskeratosiscongenita.org.uk
(if you are interested in attending stating number of people + age-group of children)
If there are any specific items you may wish to discuss please email
so we can try to find out information to support you further.
The Gary Woodward Dyskeratosis Congenita Trust
PO Box 115, Sandy, Beds, SG19 1WZ
Tel: 01767 689757/ 01438 725876
Email: info@dyskeratosiscongenita.org
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